Online Information Sites
Specific to Living Donors x
National Kidney Foundation Living Donor Website
Living Kidney Donors Network x x (Includes free live online semiars (Webinars) and workshops)
University of Minnesota Living Donor Kidney Program
Transplant Living: Living Donation
Transplant Week (Online transplant newsletter)
General Information
National Kidney Foundation (Ohio)
TRANSWEB (University of Michigan) Resource on Transplantation and Donation)
University of Maryland Transplant Center
University of Minnesota: Kidney Transplant
Ohio State University: Kidney Transplantation
U.S.Department of Health and Human Services: Government Information on Donation and Transplantation
DaVita: Kidney Disease and Dialysis Infomation
Multi-Cultural Information
Advocacy
National Kidney Foundation Advocacy & Government Relations
Women In Government Kidney Health Policy Resource Center
Renal Support Network Wellness & Education Kidney Advocacy Network
Kidney Care Partners provides interactive features that allow one to receive legislative alerts and updates, read summaries of current legislation, and review legislators' voting records on specific issues. Also provides issue-specific sample letters and state-specific tips for calling, writing, and e-mailing members of Congress.
The American Association of Kidney Patients provides an electronic newsletter and links to Congressional testimony, public policy articles & press releases, government reports & documents, public comments & correspondence, other advocacy resources, and Congressional respresentatives. Also includes an easy-to-personalize sample letter to Congress.
The American Kidney Fund provides an advocacy network and information on current issues, as well as avenues for addressing them.
The Healthy Advocacy Toolbox provides an abundance of tools, templates, sample letters, practical suggestions for communicating effectively, and tips on finding and using data.
WashingtonWatch.com provides summaries and full versions of bills on which to read and comment, links to related bills, links with pre-written e-mail messages to alert others to bills, links to Facebook and other online sites, and links to local legislators. Type "kidney," "organ donation," "transplant," or any other applicable key word into the search box on the left-hand side (under "Subscribe").
GovTrac.U.S. enables one to track the activities of Congress, providing tools for instant access to every member of Congress and their voting records, Congressional committees, current and past legislation, and links to many interesting civics sites.
Data
United Network of Organ Sharing (UNOS)
Organ Procurement and Transplantation Network
U.S. Transplant Scientific Registry of Transplant Recipients
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIF)
Videos, Podcasts, Animation, and Blogs
Video Series by Dr. Del PizzoTpresents excellent 1-2 min. videos on various aspects of kidney donation. Producer will not allow third parties to embed ivideos. Go to YouTube.com and type "Dr. DeliPizzo" intoTsearch bar.
National Kidney Foundation Coffee House Conversation (Podcasts)
National Public Radio (Podcasts Related to Kidney Donation)
The Interactive Body (Animation)
Calling All Kidneys (Blog) xx i irii ii i xx (A living donor’s experience from evaluation through donation Click "archives" on right side.)
Interview with FBI Agent Altruistic Donor (Blog)
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